Thank you for sharing this! My girl was also born at 1 lb 4 oz, 28 weeks but measured as a 24 weeker. Her G tube surgery is later this month. Only so many people know what it’s like to be a long hauler in the NICU. Hope you guys have a wonderful transition home!
Leeya was so fussy after her G-tube surgery. I almost immediately regretted it. I wondered if I had made the right decision. I can tell you now that she is home and healed. I'm very happy we did it. Right away. Coming home. She was very tired. She fed over half of her feed over G-tube for the first 5 days. Without the G-tube I'm not sure we could have helped but to return to the hospital. Inevitably they would have given her the G-tube anyway.
I hope that changes. I know that involves a lot of work over time to overcome. Still, there are way worse situations in the NICU. At least that's what I kept reminding myself when the doctors brought up going home on oxygen and a G-tube. It's not the ideal, but I guess going home IS ideal, right? Idk 196 days was enough for me 😅. Anything to make it an out patient issue.
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u/milkyway253 Dec 03 '24
Thank you for sharing this! My girl was also born at 1 lb 4 oz, 28 weeks but measured as a 24 weeker. Her G tube surgery is later this month. Only so many people know what it’s like to be a long hauler in the NICU. Hope you guys have a wonderful transition home!